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New registry established as MND becomes 'notifiable disease' in NSW

ABC Australia · Jun 24, 2026, 7:03 AM

Key takeaways

  • Three generations of Michelle Vearing’s family have been affected by motor-neurone disease.
  • The NSW government has classified motor neurone disease (MND) as a 'notifiable condition', meaning medical practitioners will be required to report diagnoses, as well as where patients live and their occupations.
  • The information will be collated in a new state registry.

Why this matters: an international story with cross-border implications worth tracking.

Three generations of Michelle Vearing’s family have been affected by motor-neurone disease. (ABC Riverina: Lucas Forbes)

The NSW government has classified motor neurone disease (MND) as a 'notifiable condition', meaning medical practitioners will be required to report diagnoses, as well as where patients live and their occupations.

The information will be collated in a new state registry.

Article preview — originally published by ABC Australia. Full story at the source.
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